Guestbook Sign the Guestbook | Administration
Saturday, July 22, 2017 01:48 PM
Thank you for visiting my site. Here you can leave your comments.
Total Records: 534   Records Viewed Per Page: 20 1 ... 24 25 [26] 27
Name Comments
34) Peggy Gastmann 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:03 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I had no idea that a screening at birth could save a childs life. It would be refreshing to think that all states had mandatory testing. Hopefully, some day they will. Thank you for your input and concern for other children. Bless you
33) Niki (Milford) Lightner 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:02 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Unfortunately I moved away when Alexis was about 6 months old & lost contact with her mom at that time. She was just as much a beautiful baby as she is now a beautiful angel. Being a mother of a 3 year old & one on the way, I appreciate you getting this story out to the public. I will definately be talking to the doctor about it & passing this on to all I know. I am very sorry for your loss. My many thoughts & prayers are with you all.
32) Madison Hightower 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:00 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I was unresponsive when my mommy came into my room on the morning of February 10, 2002. I had thrown up in bed the about five hours before but was fine when I had to wake up to change my clothes. At CMH in PICU I had seizures on and off for about 10 hrs. My brain swelled too, so badly and quickly that they gave me 48 hrs. to live. My mommy bravely told me that if I had to go be an angel with God then I could go, that she would be with me again one day. Lots of people prayed for me and I started getting better. The doctors could not explain how I got there or why I survived. But now I am severely brain damaged. Before I could walk and sorta talk. Now I can't sit up, walk, hold my head up, talk, or even eat. I've been this way for 1 1/2 yrs now. I've had five surgeries and lots of therapy. They still can't explain what happened for sure. Dr. Dasouki couldn't say for sure either but maybe he didn't test for MCAD. My mommy keeps hearing through other people that know someone with a low or lacking enzyme. Now that my mommy saw the news story about Alexis she's going to call tomorrow to see if I had that test. She's been worrying a lot lately that she's not going to be able to wake me up one of these mornings. Maybe seeing the news tonight is a blessing in disguise. Perhaps Alexis is watching out for me. My mommy geives for me everyday. I'm not her same baby, but she loves me more than ever and I'm glad I didn't leave her.
31) Alexis Dudley 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:58 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

My thoughts and prayers go to you all. Sorry to hear about such a tragic accident that could have been prevented. My name is Alexis Anne. May God be with you through these diffcult moments. At least she's in a better place (heaven). I will defintely remember this story and make sure my child gets this test done. That's if I ever get married and have children because I'm only 18 right now . Please keep in mind that I'm praying for you all.
30) Francis and Rayanna Jones 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:56 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Thanks
29) BARBARA DOUGLAS 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:56 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Dearest Kris and Kelly,
I can't imagine the loss that you have in your lives right now. Although I wasn't priviledged to know Alexis, I know that she touched so many people's lives in just eight short years. What a wonderful testimony that is to the both of you. May God give you strength and peace. I love you both, Barb
28) Lynn 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:54 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Kris & Kelley, my prayers are with you. What a tragedy to loose your precious Angel baby.
Lynn
27) Susie Todd 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:51 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We at Barrington Community Church have grieved for your loss. I have 2 small grandchildren and have passed along the information on this dreaded disease. Hopefully it might save others. May God bless.
26) Ruth and Leland Knapton 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:49 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We are the Great Grandparents of Alexis. She is deeply loved and truly missed by all of us who knew and loved her.
25) Susie Todd 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:49 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We at Barrington Community Church prayed and grieved for your loss. Lee and Ruth belong to our church family and what they felt, we did also. May God hold you in the palm of His hand.
24) Nancy Harrison 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:48 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I am Alexis's Great Aunt (Jack's sister)
Alexis is loved and missed dearly. She was a precious little angle who will always remain in my heart.
23) Melody Jefferson 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:47 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I am so sorry to hear of your loss. I want to thank Gail Egbertson and Nancy Harrison for sharing this with me so that I may have the chance to have my daughters screened. Your family is in our thoughts and prayers. God Bless You all.
22) Scott Cusick 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:46 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I'm sorry for your loss and thank you for the information. I'll be getting it for my daughters today.
21) Mac, Susan Taylor and Family 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:44 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Kelly,
You have exhibited such strength during this traumatic time. May God continue to bless you and your family.
20) Lisa Colletti 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:43 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I had the extreme pleasure of teaching Alexis in First grade. I remember her contagious smile and laugh and remember thinking I hope someday I have a child so happy. When I found out about MCAD I made a promise to Kelly and Alexis that I would have my little girl tested. Thank you Kelly and family for sharing this information with others. Alexis will always be a 'Superstar'!
19) Rachel Reid 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:42 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We will be best friends again when we meet in Heaven. But for now you will always be in my heart. Daphne's leg is okay now. I now have 2 bearded dragons. Their names are Drazzil and Peanut. They are very nice.
18) Red and Che Che Sharbrough 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:40 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Our thoughts and prayers are with you
17) Vivian James 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:40 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Kris, I sent this web site to everyone in my address book.
16) Sam Sharbrough 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:38 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Kris and Kelly,

I just opened your MCAD website. My Deck Foreman (a pretty macho friend, my age) and I both cried. My tears were mixed - sadness and joy. My prayers have been with you and will continue to be.

I never had the good fortune of Alexis touching my heart. You two are permanent parts of mine and of Lemon's. I can only imagine how many other lives you have touched.

Thanks for this site. Thanks for being who you two are. Thanks for being part of so many hearts.

Best Wishes and Always Best Regards,

Sam
15) Michelle Dean 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 05:37 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Kelly and Jason,
What a wonderful gift you have given to other parents who know nothing about this disease. Alexis has done more for humankind in her short eight years than most people do their whole life. What an absolutely precious little girl!! Thank you so much for sharing her story with all of us.
God Bless You!
Michelle Dean
HTML code is disabled 1 ... 24 25 [26] 27

Powered by Lazarus Guestbook from carbonize.co.uk

 

MCAD Angel Guestbook Sign Our Guestbook View Our Guestbook

Send eMail