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Name Comments
74) Ginger Bonnett 
IP logged Mozilla/4.0 (compatible; MSIE 5.5; AOL 7.0; Windows 98)
Thursday, October 30, 2003 05:21 PM Host: cache-mtc-ag01.proxy.aol.com Write a comment

My thoughts and prayers go out to the family of Alexis. I worked with Kris (grandmother) at the KC Star. I had met Alexis and her mother. Alexis was and is a very beautiful child. Her smile could brighten the world. I remember the picture of Alexis on Kris' desk at work. Her mom had entered into a contest. She was so pretty and happy. I had emailed all of my friends about the site and I had my niece tested. With this passing, Alexis is still a shining star. She is making sure others are protected and informed. I only hope others will take this seriously and get tested as well. Alexis...where ever you are.....Smile for US!! Remember to look both ways as you cross the streets of heaven. I know the Lord is holding your hand. We will all miss you!
73) Connie Hunter 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; FunWebProducts; .NE
Thursday, October 30, 2003 07:21 AM Host: 66.49.106.130.nw.nuvox.net Write a comment

To the family of Alexis,
She is now your beautiful guardian angel watching over you and her baby sister. My heart and prayers are with you. I lost a brother to SIDS many years ago...I feel your grief. As much as we miss them, just know that they are in a much better place without the pain and heartache of this life. God be with you.
Connie Hunter
Re/Max
72) Heather Jones 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; Q312461; YComp 5.0.
Thursday, October 30, 2003 06:49 AM Host: 66.49.106.130.nw.nuvox.net Write a comment

I just wanted to say thank you for putting out all this information on this silent killer.....I have a six year old and knew nothing about this until your misfortune...
71) Kris VanDyke Smith 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; Q312461; Y
Saturday, October 25, 2003 04:37 PM Host: cache-dq08.proxy.aol.com Write a comment

Alexis' family would like to thank all of you who have visited this website, as well as those of you who have posted in our guestbook. Passing information about supplemental screening, as well as sending a link to this website to everyone you know can save lives. Even those who don't have children, know people who do. We appreciate your help! Kris VanDyke Smith, Alexis' Grandma Kris
70) Tammy Clark 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1)
Friday, October 17, 2003 07:19 AM Host: Ottawa-ppp-198386.sympatico.ca Write a comment

I am very saddened by the death of your sweet Alexis. The way this disorder has been described to us, children of Alexis's age are not supposed to be at risk. Yeah right!!!! I just hope that some day soon babies are screened for this disorder on a regular basis and children no longer die needlessly from MCAD. I pray that we the families of these little angels will one day find peace again in our hearts. God speed Alexis and Jenna until we meet again. Hugs to you and your family Kelly.
Take care Tammy C
69) The Turnbow Family 
IP logged Mozilla/4.0 (compatible; MSIE 5.5; AOL 8.0; Windows 98)
Thursday, October 16, 2003 10:09 AM Host: cache-rp04.proxy.aol.com Write a comment

Our prayers are with your entire family whom we have learned about through your neighbor Pam. God Bless you all!
68) Steve & Michele Griffin 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; .NET CLR 1.0.3705)
Tuesday, October 14, 2003 07:42 AM IP: 216.153.135.164 Write a comment

Alexis is a beautiful little girl and will be dearly missed. Although I only got to meet her a few times when Jack and Pam would bring her along to NY on their visits, the way her smile lit up the room is impossible to forget. All of you continue to be in our hearts and prayers. The Griffin Family.
67) The Chris Kotar Family 
IP logged Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Tuesday, October 14, 2003 06:06 AM Host: 12-226-41-116.client.attbi.com Write a comment

What a beautiful little girl! I have no idea what to say to you other than I can't imagine what your going thru. Thank you for the information your providing to everyone!! God bless you!
66) linda hedin 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; Hotbar 4.3
Monday, October 13, 2003 10:24 PM Host: cache-dq08.proxy.aol.com Write a comment

I'm so sad that you lost your beautiful little girl! I'm so glad that you have shared your memories and pictures...I've enjoyed reading your guest book, it's so beautifully done.
Bless you. Sami's grandma linda
65) Nancy 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; .NET CLR 1.0.3705)
Sunday, October 12, 2003 01:01 PM Host: c-67-168-88-33.client.comcast.net Write a comment

My heart and prayers are with you, over the loss of your precious child. She and is absolutley beautiful.
God bless
Nancy
64) Melanie Ruff 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:53 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We are sorry to hear of your loss. Our thoughts and prayers are with your family. Thank you for sharing Alexis's Story and the links to information. The Ruff family.
63) Kelly Peters 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:52 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

To everyone who has signed the guestbook, Thank you! Alexis touched the lives of so many with her warm heart and beautiful smiles and I know she is looking down on us from above smiling down on us every moment of everyday. Help keep her spirit alive and please spread the word about the available screening. Please write back and let us know your results from testing. Thanks Leon it looks great! God Bless our children!!!
62) Shelly Watkins 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:48 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I am so very sorry for the loss of your little girl. Only the comfort of our loving Savior Jesus Christ can begin to ease the pain. My son lost his best friend at age 2 to MCAD. Blake has been tested and has no disorders. I hope soon that Newborn Screening will be mandatory in all 50 states. Thanks to our dear friend Robin, MS now tests for 40 different disorders and leads the US in NBS. I hope we are joined by other states soon, our children are too precious to lose to this silent killer.
May God give you the peace only He can.
Shelly
61) Jill Wood 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:47 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I am so sorry to hear about your beloved Alexis. You have my deepest sympathy.

I have a similar story. In June 2000, my healhty 3 day old baby died suddenly & silently in her sleep on our first night home from the hospital. MCAD was imediately suspected. It turns out she died from another genetic metabolic disorder - partial complex III. We have since had another daughter (not affected) and I am expecting again. Not a day goes by when I don't think of Hayley and miss her.

I can't imagine what you have been through since Alexis' death. My deepest sympathy always.
60) Rayann and James Brown 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:45 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Thank you for your knowledge and sharing this information! God Bless you!
59) Shelley 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:44 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

I thank you for all of your wonderfull information. You show GREAT strength.
58) Joey Weeks 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:43 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Alexis was a beautiful little girl. I have only met her a couple of times but will always remember that beautiful face and smile. I will make sure to get my children tested. I am very sorry for your loss and thank you for the information to help save little lives. God Bless Alexis and her family.
57) Eduardo Bravo 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:42 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Is incredible that a federal bill has not been p#@*%!ed yet on this matter (to have every single US citizen born screened). It is a shame that you had to learn this the hard way. I hope that her little sister grows healthy and well.
56) Kristine Duvall 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:41 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

We are so sorry for your loss. May God comfort you and give you the peace that only He can. You are doing a great service by letting all of us know about this testing available. We have a six yr. old and a 15 month old. I am going to contact their pediatrician to ask about the testing. We found out about this page and what has happened in your family through Diane Kelly, my grandmother. Our family will be continue to be praying for yours.
55) Cathy Spivey 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:40 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

Thank you for telling me about mcad. I will be sure to look up more info on it & pass it to my daughter.
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