| Name |
Comments |
| 436) |
Erin Kulmus |
| Ashleigh8588@yahoo.com |
Location:
Texas |
    |
|
Just found out today that our 2 mounth old litlle girl has MCADD. Thank God we found out not and dont have to endure that nightmare of not knowing until it's to late
|
| 435) |
Kathy |
| realworld150@aol.com |
Location:
New Jersey |
| |
|
My heart goes out to all the family's that lost a child to this diorder. My daughter Izabella was diagnosed with MCADD a few a days after leaving the hospital. I am so thankful the NJ does do the screening. Now after viewing this site, I feel this is very important screening that needs to be done on every baby.
|
| 434) |
Lupe |
| gabesmom0723@yahoo.com |
Location:
Tucson, AZ |
 |
|
I loved the poem it is beautiful. My son Gabriel passed away on his 24th birthday on July 23rd. Almost yrs ago. I was looking for a birthday poem and came across this one. What a beautiful daughter you have. God Bless you.
|
| 433) |
Rosie |
| rosieflo24@hotmail.com |
Location:
Arizona |
| |
|
I just wanted to tell you that I think that the poems are so beautiful. My nephew passed a way recently he was but 5 years old and it kill me and my family every day. When i read your poems I cryed, but only because they are so beautiful and true....
|
| 432) |
Will and Jamie Rogers |
| will831jamie618@hotmail.com |
Location:
Red Oak,TX |
 |
|
We almost lost our daughter Madison 2 times when she was very young who will be 8 on August 29,2009.This is something that we will never forget and have to continue to monitor.Especially if she ever gets any viruses or colds to ensure that her blood sugar doesn't drop.She has been hospitalized too many times to count but fortunately with the IV'S of glucose she lived to see another day.I just hope that screening becomes more of a priority for this disorder before more innocent children lose their life.
|
| 431) |
Marian Cox |
| mariancox1982@yahoo.com |
Location:
Okeechobee,Fl |
| |
|
I'd Like to find out to add my son's story to this web site. My son,David,is 7 years old and almost died at 18 months old. He was diagnosed having MCADD.
|
| 430) |
Steve Anderson |
| lex_stanson@hotmail.com |
Location:
Ilkley, West Yorkshire, UK |
| |
|
Hi, it's been 9months since we were told our youngest daughter had MCADD (she was 13days when we got the call). She's doing really well and we've had 3 hospital trips so far BUT it was just a precautionary measure when she had 2 bad colds and the other time she vomitted up her food and wasn't in the mood to eat anymore. We've got the Polycal incase her blood sugar is low (any its not that often) and the hospital staff are great. Hope the rest of you are doing ok and god bless you all. By knowing about what my daughter has we can follow protocol and enjoy all the fun days (they hugely outweigh the occasional trip to the hospital)
|
| 429) |
Lisa |
| crazymommy73@yahoo.com |
Location:
Toledo,Ohio |
| |
|
I am so sorry for your loss. My 16yr old daughter got her wings Feb 4 2009. You and your family will be in my thoughts.
|
| 428) |
Carly |
| xxcarly1979xx@hotmail.com |
Location:
Manchester, England |
|
|
A beautiful site, a beautiful tribute to a beautiful little girl.
No parent should ever have to lose a child.........
Thinking of all the angels up in heaven ^i^
Carly, Jake Kershaw's Mummy 11.06.06 - 05.09.08 (undiagnosed brain tumour)
|
| 427) |
Lauren |
| lkbailey@bigpond.com |
Location:
Karratha, Western Australia |
| |
|
My Daughter has just been diagnosed with MCADD when she was 2 weeks old, There have been lots of tears over the last week but now we have got our head around it because we cant sit around and sulk its just something we have to deal with, we are off to PMH next month to meet with the doctors there.
|
| 426) |
Elaine West |
| westbc@hotmail.com |
Location:
Whitehorse, Yukon Terr.Canada |
| |
|
I am very sorry that your darling daughter
had a devastating disease and passed away.
Thankyou for sharing your heartbreak, to
help others. My niece has a newborn March 21 who has been diagnosed with MCAD. Now
we are very concerned and wish to know
more about it.
May God give you peace today as you honor
your daughter by sharing her story.
thankyou.
|
| 425) |
Alisha Delgado |
| adelgado@tarcinc.org |
| |
|
I am trying to find out as much info as I can. I have no doubt that your beautiful little girl is an angel in heaven and maybe saving my three girls. I am sure the pain never goes away but thank you for having the strength and courage to share your story with the world. Peace be with you and God bless you!
|
| 424) |
Alisha Delgado |
| adelgado@tarcinc.org |
| |
|
I just left my peditricians office who instructed me to look up MCAD online as I am medically minded and he knew I would research this. I have five children 3 girls and 2 boys. Unfortunately all three of my girls are showing signs of some type of metabolic issues that every single year has landed my oldest daughter (9yrs) in the hospital due to severe dehydration. Once she starts vomiting she just can't stop and she goes downhill fast. It has been a regular part of our life since she was 2 yrs. old to have to go in for fluids. My second daughter is now 3 1/2 and she started the same thing last year when she was 2 yrs old. And we just left the hospital Wednesday this week with my third daughter who just turn 2 yrs. old March 1st with the exact same issue. It always seems like a virus starts the vomiting but then it is usually game over very quickly. We have a protocol now with our MD that as soon as they vomit we start Zofran ( a medicine to stop the vomiting) it has been successful maybe 80% of the time without it we would have landed in the hospital more time than I could count. He has wondered for a while if they have partial MCAD is what he told me today.
|
| 423) |
Kassie |
| xokassandra08ox@aim.com |
Location:
Pa |
 |
|
I'm so sorry for all of your losses i personally dont know any one with mcadd. however, i did loss my youngest sister in a atv accident three years ago. I also love the poems
|
| 422) |
Christina |
| proudmom1204@yahoo.com |
Location:
Fulton, Ny |
| |
|
My son is 5 yrs old we found out he had mcadd through the new born screening test also, he's not as bad as the other children, I thank god for that everyday. I also hope everyone elses children are ok and can live as happy normal life.
|
| 421) |
Sheena |
| sheenybean@hotmail.com |
Location:
Abbotsford B.C. |
| |
|
It is nice to see this website dedicated to making people aware of MCADD. Certainly diagnosis and knowledge are the keys to this condition. My daughter is 15 days old today and she was just diagnosed with MCADD from newborn screening. We are now well informed about this and we know she will be fine. Thankfully this is a standard test done in our Province, but unfortunately it is not done everywhere.
|
| 420) |
Leanne |
| lelelouise@hotmail.co.uk |
Location:
Portsmouth, England |
|
|
Angel Tears is the best poem I have ever seen. It reminds me of my younger cousin who died as a child. I really hope she doesn't feel the same way as the Angel in this poem. We all miss her terribly but I hope she knows that we are trying to live the life she wants us to live, not a helpless wreck. She will always be in our hearts, and untill we meet again, I will think about her always.
|
| 419) |
Rena Ewers |
| naesbubble@yahoo.com |
| |
|
Thank you soo much for your time and info. I am so sorry for your loss...
|
| 418) |
Lynn Buck |
| legally.blonde09@googlemail.com |
Location:
Sheffield |
| |
|
My 4 year old daugther has MCADD and everyday is a challenge just to keep her eating, its like force feeding her everyday. My heart goes out to everybody and my love. Lynn, Nathan and Daniella x x x x
|
| 417) |
Melissa |
| mastuemke@yahoo.com |
Location:
IL |
| |
|
Thank you for fighting so hard for the MCADD children. My baby girl was diagnosed a week after she was born due to the new born screenings required in MO. We would have never known if you and parents like you did not fight so hard to get this done. Ariyah is strong beautiful and vibrant. No one can tell she has MCADD, unless I tell them or they are part of her care.
|
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