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Total Records: 534   Records Viewed Per Page: 20 1 2 [3] 4 5 ... 27
Name Comments
494) sarah hatchell 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; WOW64; Trident/4.0; GTB6.6; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; .NET4.0C; AskTbCDS4/5.11.3.15590)
Thursday, March 31, 2011 04:49 PM Host: 74-132-38-61.dhcp.insightbb.com Write a comment

im so sorry to hear this this story made me cry.. i now learned today that my 8 day old may have this disease and i am so scared for him i feel helpless for him there is nothing i can do but wait for his results and pray i wish you the best of luck and i feel for you!!
493) Alexis' Grandma Kris 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; AOL 9.6; AOLBuild 4340.130; Windows NT 5.1; Trident/4.0; sbcydsl 3.12; YComp 5.0.0.0; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Wednesday, March 9, 2011 04:47 AM Host: adsl-67-65-35-160.dsl.ksc2mo.swbell.net Write a comment

Alexis, 8 years ago today, Jesus and the Angels took you to Heaven to live with God. I know your smile shines so brightly that it helps light the way for others. Having you in my life was, and will always be, one of the greatest gifts of my life. I love you, and I miss you more than words could ever say. I asked God to give you a special hug from me today, and I know He will. You will never ever leave my thoughts, and you will be with me in my heart forever!
492) clydedriscoll 
IP logged Mozilla/5.0 (Windows; U; Windows NT 6.1; en-US) AppleWebKit/534.13 (KHTML, like Gecko) Chrome/9.0.597.98 Safari/534.13
Monday, February 21, 2011 11:20 PM Host: CPE00179a212903-CM0017ee63940a.cpe.net.cable.rogers.com Write a comment

i have two childrean who has the conditionM.C.A.D and im so sorry to here of your loss my little girl is 4 this month and my boy is 8 years old as we speak your site hit me hard and so far i never talked to any other family whos kids have M.C.A.D i would love for a reply thankyou
491) annmarie trimm 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.1; WOW64; Trident/4.0; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; CPNTDF; InfoPath.3; .NET4.0C; AskTB5.6)
Wednesday, February 16, 2011 10:13 AM Host: ord-69-171-163-135.evdo.leapwireless.net Write a comment

i am still trying to get my 5year old son tested but they will onlt test for different illnesses if the child is hospitalized
490) faye evans 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.0; Trident/4.0; SIMBAR={0C70B7B5-E74A-4DC4-9ED6-1309027F99F2}; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.5.30729; .NET CLR 3.0.30618)
Tuesday, February 8, 2011 09:21 AM Host: adsl-36-131-53.asm.bellsouth.net Write a comment

that was one of the sweetest poems i have ever read i wish i could post it to my facebook page
489) Glenda 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; GTB6.6; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 4.0; ShopperReports 3.0.497.0; SRS_IT_E8790572B6765B5734AB90)
Sunday, February 6, 2011 03:14 PM Host: adsl-66-142-237-175.dsl.kscymo.swbell.net Write a comment

Dear Kelly, I think about Alexis often. I ran across pictures of Nick and Alexis dressed for a wedding recently, she was a beautiful and sweet girl. I think of all of you often. Your strength is a source of strength for me and many others.
488) tim oconnor md 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; WOW64; Trident/4.0; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; HPDTDF; .NET4.0C; MS-RTC LM 8)
Sunday, February 6, 2011 10:39 AM Host: 216.106.51.134.reverse.socket.net Write a comment

thanks for producing your web page, experiences such as yours helped so much in getting the fatty acid disorders on the newborn screening panel in missouri. I regret for your sake that it wasn't done sooner. but thanks again
487) Pete Peterson 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.2.13) Gecko/20101203 AskTbFWV5/3.9.1.14019 Firefox/3.6.13
Thursday, January 20, 2011 08:27 PM Host: 74-222-209-234.dyn.everestkc.net Write a comment

Playing with Alexis younger sisters made me realize how much i missed Alexis. A day doesnt go by where she isnt in my mind. She was an amazing girl and i miss her like crazy. I hope to see you soon Kelly. Love you
486) GingerB 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; GTB6.6; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Tuesday, January 18, 2011 10:38 PM Host: 70-57-94-190.slkc.qwest.net Write a comment

My daughter has MCADD too. Hannah is not one of the luckiest of MCADD kids - she had an actual metabolic crisis at just three days of age and so had a stroke and now has right hemiplegia, but CP doesn't hold her back much, she is a therapy success story in every way. You can read about Hannah at http://gas-food-lodging.blogspot.com/ And if anyone who has found you has an older child I am very interested in connecting to them too - I'd love to find a parent who could tell me how to beat that whole refusing to eat game! Also happy to talk to new parents who are scared - once you know the diagnosis, this really is something you can handle. Let's connect! My heart goes out to you angel mommies, daddies, and sibs.
485) Stacy 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.0; WOW64; Trident/4.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.5.30729; .NET CLR 3.0.30729; .NET4.0C; .NET4.0E)
Monday, January 10, 2011 12:59 PM Host: adsl-69-224-46-80.dsl.irvnca.pacbell.net Write a comment

Your story is almost identical to my precious Sophie's story. She was born before they did the screening on newborns so, I had no idea about this disorder. My daughter passed away 9 years ago today and we finally got an answer last Friday that this is what she had also. Sophie was such a beautiful, kind-hearted little girl that was born 6 days after her daddy died. Life seems so unfair at times.
484) misty harris 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; WOW64; Trident/4.0; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; HPDTDF; .NET4.0C)
Friday, December 17, 2010 11:55 AM Host: adsl-83-131-83.bhm.bellsouth.net Write a comment

I just lost my grandfather early sat. morning, he had been battling cancer for a couple of months. He was a preacher so he knew the Lord Jesus Christ, and will be spending christmas with him this year. He left behind a lrg. family and a wife of 49 years. while I was looking for a poem to give in his honor this christmas i ran accross this one and it really touched my heart. Even though my grandfather died of a different disease, i can sympathize with your loss. Just wanted you to know you and your family will be in my thoughts this holiday season. Also thk you for sharing your story! May God bless you all!
483) Sharon Moonsammy 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.2.13) Gecko/20101203 AskTbBLT/3.9.1.14019 Firefox/3.6.13 (.NET CLR 3.5.30729)
Monday, December 13, 2010 04:01 PM Host: 63-20-pool.dsl.gol.net.gy Write a comment

I Love this so much,I had a son who is also in heaven.
482) Pat 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729; InfoPath.2)
Thursday, December 9, 2010 08:54 AM IP: 160.10.30.138 Write a comment

Your poem touched my life. I lost a daugher 28, a precious grandson 8 months, and a son-in-law 28. We are still greiving horribly. We will never know why this happened in our life, but I have a blessed assurance that my daughter and grandson in in heaven with Jesus today. My daughter and grandson were killed by her husband before he took his own life. our lives will never be the same but I hope and pray I will see them again one day.
481) Ryan Partch 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Tuesday, December 7, 2010 08:40 AM Host: 64-17-64-166.mn.warpdriveonline.com Write a comment

I just wanted to say that im sorry I have 2 daughters and I couldnt begin to amagine but I can tell ya something I have lost my dad and couple real good friends and what helps me is prayer not in church or some fancy place but at home everynight before I close my eyes I talk to the ones that have past it helps me sleep at night and im only 35 years old
480) Terri L Dorendorf 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; WOW64; Trident/4.0; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; .NET4.0C)
Friday, December 3, 2010 01:31 PM Host: 72-173-64-58.cust.wildblue.net Write a comment

Love your poem and am sharing it with our community in The Compassionate Friends of Stillwater Valley newsletter
479) Steve Anderson 
IP logged Mozilla/5.0 (iPhone; U; CPU iPhone OS 4_0_1 like Mac OS X; en-us) AppleWebKit/532.9 (KHTML, like Gecko) Version/4.0.5 Mobile/8A306 Safari/6531.22.7
Thursday, October 21, 2010 12:35 PM Host: cpc2-brad4-0-0-cust77.barn.cable.virginmedia.com Write a comment

Hi, just checking in. My 2nd daughter Annabelle is now 2yrs 3mths and was with MCADD 2 weeks after she was born. She's doing great and we've been happy to report no hospital visits since she was 6mths old and even then it was a precautionary measure. Our 3rd child William was born last Wed and the doctor confirmed he foes not have MCADD so we're thrilled (even though to us it wouldn't have mattered anyway when we decided to have another child). I'm here for anyone just receiving word their child has MCADD as I know it's a shock but believe me there's a lot worse out there and our daughter Annabelle is a beautiful normal healthy 2yr old who just needs to eat up or have some Polycal in her drink. God bless you all, Steve (father of Annabelle)
478) Samantha 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.0; Trident/4.0; GTB6.5; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.5.30729; .NET CLR 3.0.30618; .NET CLR 1.1.4322)
Sunday, September 26, 2010 01:30 PM Host: pool-98-115-142-31.chi01.dsl-w.verizon.net Write a comment

I just found out a week after my baby boy was born that he had MCADD and it scared me because i didnt know what to expect. But know that i am learning more about it and know that there are other families out there going through this to makes me know that i wont go through this alone.
477) laura turner 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; Sky Broadband; FunWebProducts; GTB6.3; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.5.30729; .NET CLR 3.0.30618; .NET4.0C; OfficeLiveConnector.1.5; OfficeLivePatch.1.3)
Wednesday, September 22, 2010 09:43 AM Host: 5e0d73e0.bb.sky.com Write a comment

havent writen on this page for a while i have 5 kids 3 with m.c.a.d .d its been hard at times but i am so grateful for new born screening in our area sending my love and best wishes to those that wernt so lucky xxxxxxx and would be pleased to speak to other parents who would like a chat xxxx
476) jessica hales 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.0; Trident/4.0; Sky Broadband; GTB6.5; FunWebProducts; SLCC1; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30618; OfficeLiveConnector.1.3; OfficeLivePatch.0.0; .NET4.0C)
Sunday, August 8, 2010 03:56 PM Host: 5e0224a8.bb.sky.com Write a comment

i am 15 years old i only found out i had mcadd through losing my brother we didnt know he had mcadd till he was 1st ill. i am grateful im alive but i had to lose my brother because of this. i live a normal life but i just have to be aware that i have mcadd. im soo sorry you had to lose such a beautiful little girl. xx
475) wendy murray 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.0; Trident/4.0; Sky Broadband; GTB6.5; SLCC1; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30618; OfficeLiveConnector.1.3; OfficeLivePatch.0.0; .NET4.0C)
Friday, August 6, 2010 04:59 PM Host: 5e0deaf5.bb.sky.com Write a comment

my grandson died with mcad.i now have a 15yr old grandaughter also with mcad.if anyone would like my help.bless u all.
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