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Name Comments
274) ellen theuerkauf 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322; .NET CLR 2.0.50727)
Saturday, April 15, 2006 01:21 PM Host: blk-224-209-250.eastlink.ca Write a comment

i'm terribly sorry for your daughter's tragic death. this site has inspired me to do a school projet on MCADD, in which i will be telling your dauther's story to my class. i hope to get the message out that this disease in very serious. thanks
ellen
273) JoAnn 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1)
Thursday, April 13, 2006 11:38 AM IP: 198.185.135.7 Write a comment

I just wanted to let you know how sorry I am for your loss. My granddaughter was born on 4/3/06. She went home from the hospital on 4/5/06 only to return later that day. Her glucose level was 24. Today we found out that she has MCADD. Thank goodness she had tests performed in the hospital.

Thank you for continuing to get the word out about newborn screening.

JoAnn Vathis
272) marsha 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; MathPlayer 2.0; .NET CLR 1.1.4322; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc00; v5m)
Tuesday, April 4, 2006 07:04 AM Host: ip68-106-173-22.br.br.cox.net Write a comment

Thank you so much for this website. Before I saw it, I had never heard of this disease. As a mother of five, grandmother of one and one on the way, I truly appreciate your sharing.
271) Rachel Hall 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.0.3705; Media Center PC 2.8; .NET CLR 1.1.4322)
Saturday, April 1, 2006 09:27 PM IP: 12.206.146.70 Write a comment

We have two very special little boys that both have MCADD. We adopted them both from a very unstable home live. They are biological brothers. Thanks to newborn screening and dedicated doctors, they are alive to day. They are such a blessing to us. Until I visited your site, I had not seen anyone else with this disorder. I shared it with my other children and caregivers. They believe us when we say we need to get the boys help when they are sick. Thank you for sharing you beautiful daughter with us.
270) Cheryl Funk 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98)
Thursday, March 30, 2006 08:05 AM Host: c-24-12-91-90.hsd1.in.comcast.net Write a comment

Alexis is such a beatiful little girl. Thanks for your site. As I beileve I can get over being mad at God from the words written here. My granddaughter passed on from allergies. She was seven. you can visit her at Memory-of.com Kaliey Brianna Bowles. I know Alexis and Kaliey are having a great time in Heaven.
I will push my girls to take their children it for testing. Thank you for all the information.
269) Marion Yarbrough 
IP logged Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Monday, March 27, 2006 06:07 PM Host: ppp-115.person.net Write a comment

MAY GOD BLESS U ALL
268) Jeri Bates 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1)
Sunday, March 26, 2006 04:31 PM Host: cpe-066-056-149-220.triad.res.rr.com Write a comment

Bless you for sharing this information and for telling the MCAD story. We, too, have an MCAD child --- and went through many episodes just like the one you described before our daughter was diagnosed at the age of 18 months. Liz is now a thriving 16 year old but, of course, we continue to live with MCAD every day. You are so correct in promoting the screenings and those of us who have lived with it for a long time have worked hard to promote newborn screenings as well. Bless you and your family and the guardian angel in heaven that watches over you each day.
267) Glenda Holler 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Saturday, March 25, 2006 07:22 PM Host: cpe-024-074-082-064.carolina.res.rr.com Write a comment

My niece has had MCADD since Birth
266) beth dickerson 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; MSNIA; Windows 98; Roadrunner; .NET CLR 1.1.4322)
Saturday, March 25, 2006 06:23 PM Host: rrcs-24-123-152-15.central.biz.rr.com Write a comment

What a beautiful tribute to Alexis. You write such beauiful poetry, you are so blessed with yourgift of writing. I am so sorry for your loss. I too lost my son but his tragedy was from car accident. I wanted to get permission to share your poetry with other families, who too lost a child. Thank-you and God Bless
265) Rita Swan 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1)
Tuesday, March 7, 2006 11:09 AM Host: movl-05-055.dsl.netins.net Write a comment

Alexis was a beautiful child. Thank you for your work to prevent other deaths from metabolic disorders.
264) kwadir gallloway 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Monday, March 6, 2006 06:14 AM IP: 207.232.153.30 Write a comment

Thank you Lord for this day and time and for this poem.
263) Rose 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Monday, February 20, 2006 07:20 AM Host: utlhqgw.utl.co.ug Write a comment

May her soul Rest in Eternal Peace! Thanks for having such large hearts to share your experience with the World! May God Bless you all abundantly!
262) Tammy 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Friday, February 17, 2006 08:17 AM Host: CPE0015c6538034-CM000a739bfe9c.cpe.net.cable.rogers.com Write a comment

Hi,
Today is our daughter's fourth birthday. Unfortunately like Alexis she is not here to celebrate because of MCADD. Since Jenna's death I have been working to raise awareness of the occurance of inheritable disorders like MCADD and the benefits of early detection via newborn screening.
I am pleased to advise that the Ontario goverment has decided to expand the provinces newborn screening program to 27 disorders including MCADD. It is a shame our children have had to pay such a high price!!!!!!!!
Take care
God Bless
Tammy
261) Cindy (Makaylas Grandma) 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Monday, February 13, 2006 02:35 PM Host: 69-165-3-186.clvdoh.adelphia.net Write a comment

What a beautiful little girl Alexis is. Thank you for sharing her heartbreaking story with me. My thoughts and prayers are with you.
260) Paula 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; Media Center P
Tuesday, February 7, 2006 09:38 AM Host: host-84-9-213-47.bulldogdsl.com Write a comment

Hi there it's kira's mum. i would just like to let everyone know that 7 hospitals within the manchester (uk) area have started to test babies at the same time as the routine heel prick for MCADD. Kira's little brother was born 9 months ago, and i am happy to say he dosn't have Mcadd, Kira is doing well she is nearly 4, and starts primary school in september.
she has been in hospital quite a few times since being diagnosed but apart from this she is doing really well.
259) Yolanda Rogers 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; .NET CLR 1.0.3705)
Saturday, February 4, 2006 03:05 PM Host: www8.40-tag.com Write a comment

You are in my thoughts and prayers on the eve of Alexis' birthday. May precious memories far outweigh the pain. May blessed hope far outweigh the sorrow.
258) Jenny Ravenscroft 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1)
Wednesday, February 1, 2006 10:39 AM Host: 65-66-131-226.ded.swbell.net Write a comment

Beautiful website. Good luck with the expansion of testing in all states.
257) Liz 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.7.5) Gecko/200411
Friday, January 6, 2006 05:54 PM Host: c-24-125-172-166.hsd1.va.comcast.net Write a comment

Thank you for posting this web site; my first grandchild has received this diagnosis and it's something that concerns me. Alexis' story is tragic, and I hope you know that through your web site she lives on to help others.
256) Steve and Tricia Burns 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; America Online Browser 1.1; Windows
Tuesday, January 3, 2006 03:28 PM Host: pool-71-242-85-112.phlapa.east.verizon.net Write a comment

We have two children with MCADD. Miranda is 15 and Aaron is 12. We have been very blessed with good doctors and quick action in time of crisis. Both children are happy and striving wonderfully. God Bless, The Burns'
255) stephanie kiser 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.0.3
Monday, January 2, 2006 02:56 PM Host: pcp08613245pcs.nash01.tn.comcast.net Write a comment

My firstborn son has been diagnosed with MCAD. Not sure how I feel right now.
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