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Total Records: 534   Records Viewed Per Page: 20 1 ... 9 10 [11] 12 13 ... 27
Name Comments
334) Judy 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Thursday, March 1, 2007 07:48 PM Host: d220-236-2-36.dsl.nsw.optusnet.com.au Write a comment

Hi,

I just wanted to say how sorry I am about your loss. My daughter was diagnosed at birth with MCADD. She is currently 6.5 mths and well. I think more public knowledge of metabolic disorders needs to be available throughout the community.
333) Kristin Goen 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; FunWebProducts)
Thursday, February 22, 2007 10:00 AM Host: 74-92-190-109-Indianapolis.hfc.comcastbusiness.net Write a comment

So sorry to hear about your loss. My son has MCADD as well. When we found him unresponsive we went to the emergency room and found out his sugar level was down to 12. So needless to say we came very close to losing him. He is doing well now and luckily they have made this test a mandatory newborn screen in Indiana. It became effective 6 months after he was born. My thoughts and prayers are with you.
332) JO 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.0; yie6-uk; .NET CLR 1.1.4322)
Thursday, February 8, 2007 01:49 AM Host: cpc4-ches1-0-0-cust41.lutn.cable.ntl.com Write a comment

HI,I just wanted to share this with you. Here in the UK they have been doing a trial run on testing for MCADD and we have just been informed that IT WILL be tested for on all newborn babies now. My daughter Holly was diagnosed in May and has so far been very well.
Lets Hope America starts testing for this routinely too.
Love JO
xxx
331) Anita Brady 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Saturday, February 3, 2007 04:27 AM Host: cpc1-mapp2-0-0-cust956.nott.cable.ntl.com Write a comment

Such sadness for your family. Thank you for giving others your support.
Mum to 9 month MCADD
330) Ginny Forthofer 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Thursday, February 1, 2007 09:12 PM Host: 74-132-32-61.dhcp.insightbb.com Write a comment

What a beautiful child she was!! So very sorry for your loss. You are in my thoughts and prayers. This site is a beautiful tribute to her.
329) Diane 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Wednesday, January 31, 2007 06:37 PM Host: mgtnmibas01-pool4-a244.mgtnmi.tds.net Write a comment

Thank you for your beautiful site, I am so sorry for your loss. Thank you for speaking out about MCAD. Thanks to efforts from people like you, my daughter was diagnosed through her newborn screen almost two years ago. She is doing great. You and other families that have lost little ones to this disorder are in my prayers every night. Thank you, I am so grateful for your courage.
328) Tina Head 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Monday, January 29, 2007 06:08 AM Host: c-69-138-126-58.hsd1.fl.comcast.net Write a comment

My son has MCADD, he is 10 wks. I would like to talk to anyone who has a baby with MCADD. Thank you. ~Tina~
zanawho@comcast.net
327) Maria Chirico 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; SV1)
Wednesday, January 24, 2007 08:05 AM Host: cache-dtc-ad02.proxy.aol.com Write a comment

I found your website and I have to say it is beautiful! I lost my 20 yr old son just 3 months ago and I can not seem to imagine how to go on.. Your poems are amazing and absolutely touching.. I wrote one that I would love to share with you ..


take care
326) Roxanne 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322; .NET CLR 2.0.50727; InfoPath.1)
Tuesday, January 23, 2007 01:36 AM IP: 10.130.96.1 Write a comment

I was looking up MCADD on the internet as i am studying this for my a-levels. I came across this site and it made me weep, the poem i read is beautiful! im sorry to hear of your loss.

Roxy
325) Debbie Wallace 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Saturday, January 20, 2007 07:11 AM Host: dialup-4.226.135.119.Dial1.Dallas1.Level3.net Write a comment

Thank you for sharing your story.
I lost my 16 month old grandson Logan Jack to an unknown cause last Feb 24, 2006. I thank you for the information on MCADD.
324) Kristen Bond 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; SV1; FunWebProducts; .NET CLR 1.1.4322)
Wednesday, January 10, 2007 07:07 AM Host: cache-los-aa02.proxy.aol.com Write a comment

Hi my name is Kristen bond and ive got MCAD deficiency. I'm 16 and well, God bless Alexis
323) Deloris Galaspy 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; SV1; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 3.1)
Monday, January 8, 2007 11:57 PM Host: cache-mtc-ad09.proxy.aol.com Write a comment

This is very touching. I lost my grandson to a drunk driver. He serve our country proudly for 10 yrs. He was a Hero to not only the family but this Nation as well.
322) Nancy Moseley 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; (R1 1.3); .NET CLR 1.1.4322; InfoPath.1; .NET CLR 2.0.50727)
Friday, January 5, 2007 08:24 AM Host: ip-198-252-245-194.vbgov.com Write a comment

It's a wonderful gift to give someone, especially to a parent that has lost a child.
321) shayna 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; YPC 3.2.0; (R1 1.3; yplus 5.1.03b); .NET CLR 1.1.4322; IEMB3; IEMB3)
Tuesday, January 2, 2007 01:33 PM Host: ppp-69-217-55-20.dsl.applwi.ameritech.net Write a comment

this poem is so sweet, but sad, it really reminds me of my baby sister, who just passed away 1 yr ago.
you did a very wonderful job writing this
320) Dee Motto 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.8.0.9) Gecko/20061206 Firefox/1.5.0.9
Sunday, December 31, 2006 05:03 AM IP: 12.206.159.186 Write a comment

Kris, just wanted to say how grateful I am that you have this site up to warn and help other parents/grandparents. Alexis is such a beautiful girl and I know you miss her dearly. God bless.
319) Mandy 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.8.0.9) Gecko/20061206 Firefox/1.5.0.9
Saturday, December 23, 2006 06:54 PM Host: CPE0014bf4add5d-CM000a739c1aad.cpe.net.cable.rogers.com Write a comment

Hi my name is Mandy Stoneham Im 21 and 1 month ago My family Lost my mom to a Brain tumor. As a christian Family, I know my mom was a good christian Lady and i know where my mom is. One of the ladies from the church brought us the christmas in heaven poem (she lost her husband 1 year before us )..i just wanted to say i saw your site, and it's beautiful ...God bless you ,
318) Antoinette Ridenour 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; AOL 9.0; Windows NT 5.1; YPC 3.0.1; .NET CLR 2.0.50727; IEMB3; IEMB3)
Friday, December 22, 2006 03:02 AM Host: cache-dtc-ad02.proxy.aol.com Write a comment

Your poems are beautiful. I lost my lil girl Nov. 17, 2005 to a rare disease also. My thoughts and prayers are with you.
317) Michelle Kelly 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1)
Friday, December 15, 2006 04:13 PM Host: 163.185.240.220.dynamic.dsl.comindico.com.au Write a comment

I came across your beautiful granddaughter's page, and had to reply to let you know I was so sad to read your story. I lost my only daughter after a 4 year battle with leukemia, and I had been told Ebony would probably not survive, so I had years to prepare myself,(not that you ever can). I cannot imagine what it was like for your daughter to kiss her goodnight and not hear her voice ever again. My heart goes out to you as another mother who has lost a little one, and I will keep you in my prayers.
Regards Michelle.
316) deborah 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; YPC 3.0.0; FunWebProducts; .NET CLR 1.1.4322; yplus 4.0.00d)
Thursday, December 14, 2006 10:38 AM Host: ppp-64-108-180-117.dialup.toldoh.ameritech.net Write a comment

My heart goes out to all parents who have lost a beloved child, as I have too.
Your poems are uplifting and inspired by God, His son Jesus. All our children are in the arms of God now. We thank God for allowing us the time we did have our daughter here with us.
God Bless you all.
315) dee schmitz 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 4.0)
Tuesday, December 12, 2006 08:35 PM Host: tmtn-02-004.dsl.netins.net Write a comment

Reading through the poems and stories. My heart goes out to all of the parents who have lost their children.
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