Guestbook Sign the Guestbook | Administration
Saturday, July 22, 2017 07:38 PM
Thank you for visiting my site. Here you can leave your comments.
Total Records: 534   Records Viewed Per Page: 20 1 [2] 3 4 ... 27
Name Comments
514) Brittaney 
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10_8_1) AppleWebKit/536.25 (KHTML, like Gecko) Version/6.0 Safari/536.25
Wednesday, September 12, 2012 12:51 PM Host: CPE-70-92-184-128.wi.res.rr.com Write a comment

We have three children 7,5, and 2. Our two year old son has MCADD and our older two are unaffected. I am extremely grateful that the newborn testing done in our state includes looking for MCADD. This is a beautiful site that continues to encourage newborn screening which is a live saver to so many! Thank you for sharing your story and continuing to support the newborn screening! God bless!
513) Dana Fisher 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Sunday, August 19, 2012 02:14 AM Host: 202-180-107-92.callplus.net.nz Write a comment

I have 2 children out of 4, with MCAD. They didnt test for MCAD when my first two were born, but did in 2007 the same year my first MCAD child was born. What a shock....! Now I have 2. They are just fine with only one hospital visit so far...xxx My thoughts are with you for your baby girl. Thank you.
512) angela webber 
IP logged Mozilla/5.0 (Linux; U; Android 2.2.1; en-gb; HTC_Wildfire_A3333 Build/FRG83D) AppleWebKit/533.1 (KHTML, like Gecko) Version/4.0 Mobile Safari/533.1
Wednesday, April 18, 2012 06:37 AM IP: 31.99.178.37 Write a comment

I have 3 children with mcadd ages 7,6, an 2 its very difficult at times but we have learned to live with their condition an how to manage it .
511) Shawna Sparks 
IP logged Mozilla/5.0 (Windows NT 5.1; rv:7.0.1) Gecko/20100101 Firefox/7.0.1
Monday, April 16, 2012 04:55 AM Host: 173-80-241-43.atw.dyn.suddenlink.net Write a comment

Your story is so touching. My son was diagnosed with MCADD shortly after his birth and is now 4 months old. Thank you for sharing and my prayers are with you.
510) Allysen Jones 
IP logged Mozilla/5.0 (Linux; U; Android 2.2; en-us; SAMSUNG-SGH-I897 Build/FROYO) AppleWebKit/533.1 (KHTML, like Gecko) Version/4.0 Mobile Safari/533.1
Tuesday, April 3, 2012 09:48 PM Host: bthnggts202-dmz.mycingular.net Write a comment

My son was diagnosed with mcadd in June of 2009. He is absolutely the love of my life.
509) Mara 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Wednesday, February 29, 2012 05:17 AM Host: 184-12-65-14.dr01.glvv.ny.frontiernet.net Write a comment

Just got the news that my 2 month old baby boy has MCAD. Very heart-breaking but so grateful we caught it. Your website is a great support.
508) Sheena 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:8.0.1) Gecko/20100101 Firefox/8.0.1
Wednesday, February 1, 2012 01:20 PM Host: S0106001e582eafe6.va.shawcable.net Write a comment

Hello,

I just wanted to re-emphasize the importance of having children tested early on for rare conditions such as MCADD. Just 3 years ago I had never heard of this condition. We recently has our second child, and both have been dignosed with MCADD. Since we found out early with both, we have not had any major problems, other than having my daughter admitted once to the hospital when she was sick. Knowing is everything.
507) Lisa Lathan 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Thursday, December 29, 2011 07:53 PM Host: c-76-17-12-152.hsd1.ga.comcast.net Write a comment

I am sorry for your loss. My daughter Olivia is 6 weeks, we found out when she was 6 days old that she has MCAD.

Thank you for taking the time to educate others about this disorder.
506) laura 
IP logged Mozilla/5.0 (SymbianOS/9.4; Series60/5.0 Nokia5230/40.0.003; Profile/MIDP-2.1 Configuration/CLDC-1.1 ) AppleWebKit/525 (KHTML, like Gecko) Version/3.0 BrowserNG/7.2.7.4 3gpp-gba
Thursday, December 1, 2011 12:58 PM IP: 10.64.165.15 Write a comment

just came across your page, while looking for a heaven poem for my daughter, have just read this with tears streaming down my face :( sleep tight beautiful angel xxxxxxx so sorry for your loss xx
505) Rose 
IP logged Mozilla/5.0 (Windows; U; Windows NT 6.0; en-US; rv:1.9.2.18) Gecko/20110614 Firefox/3.6.18 ( .NET CLR 3.5.30729; .NET4.0C)
Tuesday, November 29, 2011 11:17 AM Host: stjhnbsu0nw-142167024053.dhcp-dynamic.FibreOp.nb.bellaliant. Write a comment

I wanted to say how sorry I am for your loss of such a beautiful precious child.I read her story with tears in my eyes I agree Alexis has left a huge imprint on the lives of so many and I am one now.Thank you for share her with us. I feel blessed to have found Alexis memorial page.
504) carmen soto 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; Trident/4.0; FunWebProducts; GTB7.2; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; AskTbEPC/5.13.1.18107; FunWebProducts)
Monday, November 28, 2011 10:22 PM Host: ool-4576b932.dyn.optonline.net Write a comment

The most beautiful poem i've ever read...now i know my brother is ok...
503) Autumn Breon 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/535.2 (KHTML, like Gecko) Chrome/15.0.874.121 Safari/535.2
Tuesday, November 22, 2011 12:21 PM Host: h69-131-54-252.lgtnpa.dsl.dynamic.tds.net Write a comment

Our daughter Carlee tested positive for MCAD at her newborn screening. She is currently 6 weeks old and doing well so far. Thank you for the info provided on this webpage, this was not a diagnosis we have ever heard of (and neither had or pediatrician, but he has been wonderful with getting himself and us educated) so it is helpful to get the insight from other families that MCAD has touched their lives.
502) Tatjana 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/535.2 (KHTML, like Gecko) Chrome/15.0.874.106 Safari/535.2
Wednesday, November 9, 2011 07:48 PM Host: 97-82-61-27.dhcp.mtgm.al.charter.com Write a comment

I am so sorry for the loss of your beautiful angel. Creating this website You are helping to save many children's lives... thank you very much and God Bless you. Tatyana
501) Annick 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; fr; rv:1.9.2.23) Gecko/20110920 Firefox/3.6.23 GTB7.1
Thursday, October 27, 2011 04:17 AM Host: reverse51-90.reserver.ru Write a comment

what a beautiful site, thank you for this publication and I also wish you good luck and good day
500) anna 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 6.1; Trident/4.0; SLCC2; .NET CLR 2.0.50727; .NET CLR 3.5.30729; .NET CLR 3.0.30729; Media Center PC 6.0; InfoPath.3; MALC)
Thursday, August 25, 2011 10:00 AM IP: 168.216.91.132 Write a comment

i have a son that has mcadd too and he is 7 monuths and im not sure how to understand it.. i hope ur kids grow out of it
499) Malissa Parks 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:5.0) Gecko/20100101 Firefox/5.0
Tuesday, August 23, 2011 08:30 PM Host: nc-71-48-3-125.dhcp.embarqhsd.net Write a comment

I am so sorry for the loss of your beautiful angel!! A friend of ours recently lost her 13 month old daughter to a heart disease that could have been detected earlier by screening. It may or may not have changed the outcome (she died waiting for a donor heart) but earlier treatment might have at least given her more time. :( God bless you and I will keep you in my prayers!
498) Sheila 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729; .NET CLR 1.1.4322)
Monday, May 16, 2011 11:18 AM IP: 12.151.138.194 Write a comment

Our very precious 1st granddaughter was born 2 weeks ago today and diagnosed with MCAD. I have been gathering any information I can to learn and prevent and protect her from harm.
497) Kirk Ward 
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; GTB6.6; .NET CLR 1.1.4322; InfoPath.2; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Friday, May 13, 2011 04:50 AM Host: 109-170-200-168.xdsl.murphx.net Write a comment

Hi, I came across this website researching MCADD as my 11 month old Daughter was diagnosed with it at 2 weeks old. She is now 11 months old and shes abslutely fine. Hopefully this wont cause her many problems in the future but she has already spent a week in hospital due to her having a Viral Infection and she refused to feed.

I am so sorry for your loss and the loss of everyones Children on this guestbook and I hope that I never have to suffer the same. God Bless everyone.
496) Sophia Greathouse 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US) AppleWebKit/534.16 (KHTML, like Gecko) Chrome/10.0.648.205 Safari/534.16
Sunday, May 1, 2011 10:08 AM Host: cpe-71-72-55-223.neo.res.rr.com Write a comment

I stumbled on this website while doing research for a project. I looked at this little girls age, and she would be about the same age as me now. I have MCADD too, so that's kind of cool, I guess. I'll keep her in my prayers!
495) Dianna J. Powell 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729; InfoPath.2)
Monday, April 4, 2011 11:27 AM IP: 12.196.218.178 Write a comment

My daughter Morgan Brianne Powell died of this disease on 3/13/92. She was 13 months old. She had been diagnosed and died 7 months later.
HTML code is disabled 1 [2] 3 4 ... 27

Powered by Lazarus Guestbook from carbonize.co.uk

 

MCAD Angel Guestbook Sign Our Guestbook View Our Guestbook

Send eMail