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Name Comments
394) Engi 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.0; en-US; rv:1.9.0.1) Gecko/2008070208 Firefox/3.0.1
Saturday, September 6, 2008 06:30 PM Host: c-24-99-147-221.hsd1.ga.comcast.net Write a comment

Thank you for taking the time to share and educate. I am so sorry for your loss. May you be blessed for your graciousness in taking the time to help others.
393) Aleatha S. (Rickard) West 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; FunWebProducts; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 4.0)
Monday, August 11, 2008 08:56 PM Host: c-71-228-241-228.hsd1.ky.comcast.net Write a comment

I first signed your webpage on March 27, 2004, indicating that my son was also born with MCAD Disorder. Thanks to his specialist and YOU, my son, Levi, is now 4 1/2 years old and will be starting his very first day of PreSchool tomorrow. He runs, jumps, plays and laughs with his older brother, and does everything a normal child does. He is my miracle child, and I want to thank you again.
392) Eleanor Ellerslie 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; .NET CLR 3.0.04506)
Monday, August 11, 2008 01:10 PM Host: host217-43-15-221.range217-43.btcentralplus.com Write a comment

I'm so sorry for the loss of your beautiful Alexis. I came across her site by chance looking for a poem for my angel, Adam. He would be 3 today. Love to you all.
391) Steve Anderson 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; (R1 1.5); .NET CLR 1.1.4322)
Friday, August 1, 2008 01:48 AM Host: 82-38-52-143.cable.ubr04.brad.blueyonder.co.uk Write a comment

My wife and I were told yesterday that our 13day old daughter has MCADD.
Our 18mth old doesn't have it but we're having her checked again to be sure.

It's quite difficult coming to terms with the odds of this happening to us but having read this website I feel much better that others are going through this so thankyou for setting this up. I'm so scared about my baby getting ill but thank god they diagnosed it early. If anyone wishes to contact me that is going through the same please do. God bless you all
390) Maria 
IP logged Mozilla/5.0 (Macintosh; U; Intel Mac OS X 10_5_4; en-us) AppleWebKit/525.18 (KHTML, like Gecko) Version/3.1.2 Safari/525.20.1
Saturday, July 12, 2008 03:36 PM Host: 62-30-207-147.cable.ubr01.nail.blueyonder.co.uk Write a comment

I am so sorry to hear of your loss. I also found out my son had MCAD in an awful way, however, I think luck and time and fantastic paramedics were on our side. After trying to wake my son at 7am a little earlier than normal, I found I could not wake him. He had suffered a sickness bug the previous day, I even took him to see a docter who advised me to just keep giving him water! On that morning, I even drove my son to his grandmas in the morning thinking he was sleeping from yesterdays illness. By the time I arrived I could barely get him to open his eyes. We called an ambulance who discovered quickly he had 0 blood sugar reading. The nurse made the right decision to put a large needle into his knee to get glucose into his body fast. The nurse saved my sons life and i will always be so grateful. A week later we found out our son had MCAD. We now know how to manage it and he has had one sickness bug since and been back to hospital to be put onto a glucose drip. There should be more awareness of MCAD. Most docters have never heard of the condition and i have to always hand them a note from our consultant telling them what they need to do. I have been told in October all babies will be screened in the UK for MCAD as routine. We need to get more people aware of the condition to prevent any more deaths occurring. My thought are with you.
389) Richard 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 1.0.3705)
Friday, July 4, 2008 07:34 AM IP: 81.59.232.11 Write a comment

The mcadd hyves should be:

http://mcadd.hyves.nl
388) Richard 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 1.0.3705)
Friday, July 4, 2008 07:31 AM IP: 81.59.232.11 Write a comment

We opened a mcadd-hyve

Go to Http://mcadd.hyves
387) kati3e peterson 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 4.0)
Saturday, June 28, 2008 07:51 PM Host: 64-136-203-168.dyn.everestkc.net Write a comment

I ve been thinking of you lateley alexis. I miss you so much I know if you were here now we would be best friend. We were and we still are and you will always be in my heart.
386) Alicia 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; .NET CLR 3.0.04506)
Wednesday, June 25, 2008 09:38 AM Host: cpe-66-25-177-226.austin.res.rr.com Write a comment

Hi my name is Alicia and ilost my baby girl in 2006 from a blood clot in her heart. she was born premature. She had alot of complication at birth because she was so early. she was 1pnd 6 ounces. she would be celebrating her 2nd birthday today if she ws still here.
385) John 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.0.3705; .NET CLR 1.1.4322)
Tuesday, June 24, 2008 10:36 AM Host: CPE-72-135-121-181.new.res.rr.com Write a comment

Thank you...I have been so very blessed by my visit to your wonderful website. May our wonderful God bless you with His grace and love! John
384) shevon wragg 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-GB; rv:1.8.1.14) Gecko/20080404 Firefox/2.0.0.14
Wednesday, May 21, 2008 06:22 PM Host: cpc4-mfld12-0-0-cust782.nott.cable.ntl.com Write a comment

Im so sorry for your loss. I am a mum of a boy born with MCADD. He is 4 today. I am lucky enough they started testing for this silent killer the month before he was born. If you need any help from England then call on me. After many emergency visits to the hospital i know how hard this condition is. Keep fighting. Mums like me are behind you every step of the way. XX
383) Ashley Walker 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; FunWebProducts; .NET CLR 2.0.50727; .NET CLR 1.1.4322)
Saturday, May 10, 2008 08:12 PM Host: port0152-agl-adsl.cwjamaica.com Write a comment

Your poems r so touching i luv them !!!!!!!!!
382) Jamie Sealock 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Wednesday, May 7, 2008 06:03 AM Host: 69-179-188-225.dyn.centurytel.net Write a comment

my daughter was born feb 27th 08 and has mcadd... she is on medicine for it now and goes to carnial glennon every three months in st louis to keep a close eye. this was only one of her problems she had many other birth defects.
381) MICHAEL J ROBERTS 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; InfoPath.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727)
Monday, May 5, 2008 08:32 AM IP: 162.51.176.80 Write a comment

A beautful child, Our thoughts, prayers and condolences to your precious Family
380) Jill Winters 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.8.1.13) Gecko/20080311 Firefox/2.0.0.13
Friday, April 11, 2008 06:19 AM Host: 68-115-155-071.dhcp.hckr.nc.charter.com Write a comment

Hi. I read about you daughter on AIM in yahoo groups. I lost my daughter to SIDS in September 2007. I am so thankful for people like you that help spread the awareness of metabolic disorders. I would have never known to test for them....and i am currently pregnant. Your daughter is absolutely beautiful...i am sure she is holding my angel Gracie in her arms.
379) ron 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.1; AOLBuild 4334.34; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Monday, March 24, 2008 08:27 PM Host: cache-dtc-ab12.proxy.aol.com Write a comment

My daughter also has mcad, we found out when we took her to the ER unresponsive.
They quickly found her blood sugar to be below 10. Now she is almost 5 years old healthy beautiful little girl. Hope you have the luck me and my wife had with out daughter.

Ron,Erica and little
SHYANN
378) christine marshall 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322)
Saturday, February 23, 2008 01:22 PM Host: m48-mp4.cvx3-c.bre.dial.ntli.net Write a comment

my son has got mcadd it was found at 1 week old he has had to stay in hosptail about 8 times with sicking.
377) Keri-Ann 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 2.0.50727; InfoPath.1)
Thursday, February 21, 2008 11:17 AM Host: netaccess.southcoast.org Write a comment

Hi Everyone I also have a daughter that has MCADD. We found out when she was 5 days old, which is a blessing that we got her tested... I am sorry for all the parents out there that have lost there children to MCADD.My heart goes out to each of you.. my biggest question to anyone or everyone is that I am having such a hard time feeding my daughter. Yes my daughter now is 15 months old and she is eating table food, but it seems like I am running out of ideas on what to feed her. I am looking for suggestions, and I am also trying to find out other things she can eat when she get's older. If anyone can help on this subject and give me any more info. on MCADD, it would so be appreciated. Please e-mail me anytime. Thank you!
376) Tara Cain- Gonzales 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.0)
Saturday, January 26, 2008 10:13 PM Host: 99-163-19-75.lightspeed.mssnks.sbcglobal.net Write a comment

Kelly, Hi, I met you back in high school when we went to Oak Park. I am so sorry to hear of your loss. I just heard about it and after reading the poem and the info on this website, I am going to have my 4 kids tested. I saw Alexis when you lived in some apartments in Gladstone, Mo. She always had a smile on her face and she was so cute. I would like to get in touch with you again, so please e-mail me sometime.
My thoughts and prayers are with you and your family.
375) Jill Messer 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; FunWebProducts; .NET CLR 1.1.4322; IEMB3; IEMB3)
Saturday, January 19, 2008 04:56 PM Host: 75-104-96-56.cust.wildblue.net Write a comment

My son has MCADD, He is eight years old, we found out about 9 months ago.
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