Guestbook Sign the Guestbook | Administration
Saturday, November 18, 2017 07:25 AM
Thank you for visiting my site. Here you can leave your comments.
Total Records: 534   Records Viewed Per Page: 20 1 ... 5 6 [7] 8 9 ... 27
Name Comments
414) Nicole Smith 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.1; AOLBuild 4334.5004; Windows NT 5.1; SV1; FunWebProducts)
Sunday, January 25, 2009 06:02 PM Host: cache-mtc-ab12.proxy.aol.com Write a comment

David's bday story is very intriguing. I am glad he beat any odds against him and that he was able to be with his family shortly. It sounds like it was very stressful but manageable too.

Thank you for sharing!
413) joanne 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; Sky Broadband; SIMBAR={0EB07F12-C2D1-11DC-88E0-001B3826C165}; FunWebProducts; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Monday, January 19, 2009 02:36 PM Host: 5ad03870.bb.sky.com Write a comment

hi, my son thomas will be 3 on the 25th feb 2009, we was told that thomas had mcadd a few week's after his birth. thomas has been admitted into hospital alot over his 3 years of life but bounces back each time. he is such a little live wire and doesnt let anything affect him. thomas is my 3rd child, my daughters ellie and louise do not have mcadd. when i tell people about this rare condition not one person has heard of it. i just wanted to express my feeling as a mother who has a child with mcadd. we all know how special our children are, and what a wonderful job we all do to keep our beautiful children safe. xx
412) Sarah Edmonson 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; FunWebProducts; GTB5; .NET CLR 1.1.4322; .NET CLR 2.0.50727)
Monday, January 19, 2009 12:20 PM Host: cpe-024-074-120-200.carolina.res.rr.com Write a comment

Thank you for sharing your story with us. Thinking of you....
411) Brigid 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.0.5) Gecko/2008120122 Firefox/3.0.5
Saturday, December 27, 2008 09:35 PM Host: ip68-226-180-161.lf.br.cox.net Write a comment

My boyfriend and I just lost his daughter a day after surgery. The coroner is saying that her MCADD was the cause of death. I feel bad that it took this for me to open my eyes to what this disease really is. I will forever miss Mikylie. She after all was like my daughter. I will always miss the momma's and the hugs and the kisses. Thank you for this website and all the help it has brought me. Unfortunately I waited too long and now its too late.
410) Megan Watson 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Tuesday, December 23, 2008 05:41 AM Host: 74-47-28-212.dr01.famt.ga.frontiernet.net Write a comment

My 17 month old neice Kenzie, was diagnosed with MCADD with she was about a week old. Ofcourse it was something new that none of us or anyone we know have ever heard about. Some of these stories really touched me. I'm afraid that my sister lets her eat food that is not allowed on her special diet. My heart goes out to the people who lost their children due to this disease. God Bless You.
409) Jen 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; Media Center PC 3.0; .NET CLR 1.0.3705; .NET CLR 2.0.50727)
Friday, December 19, 2008 07:23 PM Host: pool-71-254-114-53.hrbgpa.east.verizon.net Write a comment

I am so sorry for your loss, but thankful for your courage. AFter my daughters near death in 2005, we have been medically testing her every since. now almost 4 years later and still finding her in bed unconsious. WE have been to 14 doctors, and still no diagnosis. This is the first thing that sounds close. But now I am scared to death--we spent the day on the phone with our docs, Gaestro, ANd those at Children's hospital of Phila. ANd they are not helping, I was wondering if there is anyway I could be contacted by Anna's parents. We see in there blog that they went to CHOP as well. WE would love to know who they saw--plus we want to get a screening test ASAP.
408) Jo Brogan 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.04506.30)
Tuesday, December 16, 2008 03:11 AM Host: holly160.blackpool.ac.uk Write a comment

i didn't realise how many people all throughout the world were affected by MCADD. My son has MCADD and was diagnosed at the age of nine,
407) Pam George 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; InfoPath.1; .NET CLR 2.0.50727)
Monday, December 15, 2008 08:12 AM IP: 152.11.151.144 Write a comment

My heart goes out to you. I can not even imagine how it would feel to lose a child. My dad recently passed at age 76 in August. His birthday will be Dec. 17. and searching for a poem I came across yours. My prayers of Gods comfort go out to you. So far I am struggling for that relief. It is so hard to let go. May God hold you close.
406) kathryn riddell 
IP logged Mozilla/5.0 (Macintosh; U; Intel Mac OS X 10_4_11; en) AppleWebKit/525.18 (KHTML, like Gecko) Version/3.1.2 Safari/525.22
Tuesday, December 9, 2008 08:46 AM Host: host81-152-28-78.range81-152.btcentralplus.com Write a comment

HI my son Jae was born on 15th august 2008 he was diagnosed with mcadd at 5 days old through the screening program which was only started on the 1st august 2008 in our area my 4 year old was then tested but does not have mcadd. Jae is now 3 months old an has been hospitalized twice his first admission was at 6 weeks cos he had a cold an wouldnt feed, he was given a feeding tube an came home 5 days later. his second admission was yesterday he slept 8 hours for the first time an I woke up to find him having a seizure he had extremley low sugars the hospital acted quickly an he came home tha same day. Im so grateful he was tested an I pray he stays well in the future we now have a baby monitor with feeding alarms to prevent this reoccuring.this site has been such a help to me these tests saved his life. god bless you all feel free to get in touch luv kat
405) Joanne Tapp 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Monday, December 8, 2008 08:11 AM Host: user-544071a0.wfd80b.dsl.pol.co.uk Write a comment

Lilly-May is 2 christmas day 2008 and was dignosied with mcadd at 10days old after having her heel prick test. As her mother I continously worry if she has eaten enough or if she is going to get a bug. Mcadd seems to be becoming a more common condition than before as this is due to screening. The thought of loosing Lilly-May to mcadd is unbarable. I think more people need to be made aware of mcadd.
404) Leanne Jackson 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 2.0.50727)
Monday, November 24, 2008 10:22 AM Host: 62-30-34-152.cable.ubr03.pres.blueyonder.co.uk Write a comment

Hello to all parents on this website, my name is Leanne.
403) krystan 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Monday, November 17, 2008 02:56 PM Host: cdm-75-109-87-31.asbnva.dh.suddenlink.net Write a comment

wow this is so sad i am only 15 but your stories have really touched me
i will pray for each and everyone of you
402) steven Duran 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.0.4) Gecko/2008102920 Firefox/3.0.4
Sunday, November 16, 2008 08:21 PM Host: 64-195-85-108.mod.clearwire-dns.net Write a comment

i am so sorry to hear about your loss, i read your story by chance, i was looking for a poem for our little angel Ariana she would've been 12
401) Miranda 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.0.3) Gecko/2008092417 Firefox/3.0.3
Tuesday, November 11, 2008 10:07 AM Host: 86-100-82-246-ip.balticum.lt Write a comment

Nice looking, simple design, I just love to come here!!! Well done ;)
400) Lora 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.04506.30)
Friday, November 7, 2008 02:37 PM Host: mail.glbarron.com Write a comment

Our son is 14mths and he has MCADD. We just movied to Fort Worth and searching for a doctor that has worked with children that have MCADD. Does anyone have any suggestions? By the way this website is very informative. I appreciate all the advise I can get.
399) Pete Peterson 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1; .NET CLR 1.0.3705; .NET CLR 1.1.4322; Media Center PC 4.0)
Tuesday, October 21, 2008 07:42 PM Host: 64-136-203-168.dyn.everestkc.net Write a comment

I loved alexis and will always remember her and miss her. She was so joyful and playful. she would do cartwheels through my basement and we played as a family. My sister margaret katie and hannah. We all loved her and never will forget her. Thanks Kris and Kelly
398) sande hasty 
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.9.0.3) Gecko/2008092417 YFF3 Firefox/3.0.3
Sunday, October 19, 2008 04:30 PM Host: adsl-75-23-213-15.dsl.wcfltx.sbcglobal.net Write a comment

beautiful story
397) Jeni Bridge 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; InfoPath.1)
Saturday, September 27, 2008 03:49 AM Host: 88-108-115-8.dynamic.dsl.as9105.com Write a comment

7weeks ago I lost my 14wk old son to what we thought was a cot death, turns out it was MCAD and because newborns aren't routinely screened in our area we had no idea. I applaud your raising awareness with your website keep up the good work
396) Nikki Morales 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; FunWebProducts; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Sunday, September 21, 2008 01:50 PM Host: ip24-253-196-228.ok.ok.cox.net Write a comment

I had a baby on august 15 2008, a little boy and he was diagnosed with MCADD a couple days after he was born. Never hearing of it its good to be able to come here and read about other peoples stories! There very heart warming and some very sad I thank God they tested for it while he was in the hospital. I wouldnt know what to do if something was to happen to him the families that has lost children from MCADD my prayers and love goes out to you!!!
395) Abigail Boals 
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Wednesday, September 17, 2008 02:33 PM Host: c-76-107-71-231.hsd1.la.comcast.net Write a comment

This website is very heartwarming!! My daughter Abby was diagnosed with MCAD at 3 weeks of age. We have been real thankful that to this day, she has not had a metabolic crisis. Thanks alot and Keep posting!!
HTML code is disabled 1 ... 5 6 [7] 8 9 ... 27

Powered by Lazarus Guestbook from carbonize.co.uk

 

MCAD Angel Guestbook Sign Our Guestbook View Our Guestbook

Send eMail