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Total Records: 534   Records Viewed Per Page: 20 [1] 2 3 ... 27
Name Comments
534) Kris Smith 
IP logged Mozilla/5.0 (Windows NT 10.0; Win64; x64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/56.0.2924.87 Safari/537.36
Thursday, March 9, 2017 08:37 PM Host: cpe-108-167-73-205.kc.res.rr.com Write a comment

Thinking of you on your going to heaven day, Alexis, and I know you are smiling down on us from up above. Memories of our time together keep my heart so warm, even on the coldest of days and nights. Your Light will shine brightly forever in the hearts of all whose lives you touched so deeply, and someday that light will help lead me to Heaven, where I will see you once again. Love you, my sweet grandgirl!
533) Richard Van Dyke Sr 
IP logged Mozilla/5.0 (Linux; Android 5.1.1; SAMSUNG-SM-G750A Build/LMY47X; wv) AppleWebKit/537.36 (KHTML, like Gecko) Version/4.0 Chrome/54.0.2840.85 Mobile Safari/537.36
Thursday, March 9, 2017 03:15 PM Host: mobile-166-137-125-093.mycingular.net Write a comment

I miss my Alexis everyday she was a joy to be around and when she spent a weekend with me our Saturday mornings were the best.
532) Heaven needed a hero! 
IP logged Mozilla/5.0 (iPhone; CPU iPhone OS 9_3_1 like Mac OS X) AppleWebKit/601.1.46 (KHTML, like Gecko) Version/9.0 Mobile/13E238 Safari/601.1
Friday, April 15, 2016 07:55 PM IP: 12.165.86.131 Write a comment

On May. 08, 2912 my sons daddy passed away, he fm had AKWAYS been healthy! But, on May 07, 2012....he was SICK! Vomiting blood, and scared! The ER assumed it was either bleeding ulcers, or DRUGS! When he began to act irrationally they assumed he was under the influence! His autopsy later proved it was MCAD...my son lost his hero, I lost my best friend!
531) Kris Smith 
IP logged Mozilla/5.0 (Windows NT 6.0) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/48.0.2564.116 Safari/537.36
Wednesday, March 9, 2016 10:35 AM Host: cpe-108-167-73-205.kc.res.rr.com Write a comment

Alexis, today is the 13th Anniversary of your "Going to Heaven Day". I will never forget how hard it was to say goodbye to you that day, but I also know I will get to say hello to you again someday. I've said this so many times, but thank you for being my granddaughter, and for teaching me so many things during the 8 years you were with us. You have been one of the greatest of God's gifts to all whose lives you have touched. I think about you ever single day, and those memories, and all that love, will stay in my heart forever and ever. Sending you kisses and hugs, my sweet little Lexie.
530) Mary Thomason 
IP logged Mozilla/5.0 (Windows NT 6.3; WOW64; Trident/7.0; Touch; rv:11.0) like Gecko
Friday, December 25, 2015 10:02 PM IP: 108.225.211.33 Write a comment

Thank you for this
529) Gail 
IP logged Mozilla/5.0 (iPad; CPU OS 8_2 like Mac OS X) AppleWebKit/600.1.4 (KHTML, like Gecko) GSA/9.0.60246 Mobile/12D508 Safari/600.1.4
Sunday, October 25, 2015 12:33 PM Host: 5e07b3f6.bb.sky.com Write a comment

I am so sorry. Your poor child. I have an 8 year old and can not imagine this. God bless her 💖
528) Brandi Lyons 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; Trident/7.0; rv:11.0) like Gecko
Thursday, April 2, 2015 02:37 PM Host: adsl-75-53-192-186.dsl.hstntx.sbcglobal.net Write a comment

I have 8 children, 5 of which have Mcadd....
527) Aaron and Renee 
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; Trident/7.0; rv:11.0) like Gecko
Friday, June 6, 2014 07:38 PM Host: 173-166-75-129-newengland.hfc.comcastbusiness.net Write a comment

Our daughter Leah was recently diagnosed. She is 5 days old and we are fortunate it's been detected early, but we are nervous and anxious for her future and treatment. What type of support groups are out there for us? We are in the Boston area..
526) Jennifer Serrano 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Tuesday, June 3, 2014 09:49 AM IP: 159.87.155.54 Write a comment

My Son, Steel was diagnosed at 8 days old due to the newborn screening test in our state. He was later also diagnosed Autistic, making the MCAD a challenge. Knowledge is power! Knowing about the disorder and providing strangers with the knowledge will hopefully save other children from dying from this disease. Thanks for sharing other families stories and allowing me to keep them in my prayers.
525) nurullah 
IP logged Mozilla/5.0 (Windows NT 6.1) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/33.0.1750.154 Safari/537.36
Thursday, March 27, 2014 03:42 PM Host: 81.213.43.19.dynamic.ttnet.com.tr Write a comment

i am studying medicine in turkey and i learned this web site from our lectures.i just wanted to look briefly but i see this site is rally impressive.i wanted you to know i share your feelings while i reading the poems, while looking the pictures and while reading the story.i pray god for our angel.
524) Bea Salas 
IP logged Mozilla/5.0 (Windows NT 6.1; rv:22.0) Gecko/20100101 Firefox/22.0
Thursday, March 13, 2014 12:57 AM Host: 112.207.169.54.pldt.net Write a comment

This is a great page Kris! I myself didn't know about MCAD, not even when i called you the other day, until now, that i get to see this wonderful website. I have children too and they haven't been tested, I will make sure they get one ASAP. Lexie Madison Ben Michelle Alex Kira Anna David Samara Isaac Dylan Chase Gavin and all other angels - their stories are very touching and my heart goes to all of you little angels.

Kris, Kelly - continue to be a blessing to other people
523) Kris Smith 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.0; Trident/5.0)
Sunday, March 9, 2014 03:52 PM Host: cpe-75-87-163-195.kc.res.rr.com Write a comment

On the Anniversary of your "going to Heaven day" I'm sending extra hugs for you today. I love you, Lexie.
522) Shanna Brincks 
IP logged Mozilla/5.0 (Linux; U; Android 2.2.2; en-us; LG-P504 Build/FRG83G) AppleWebKit/533.1 (KHTML, like Gecko) Version/4.0 Mobile Safari/533.1 MMS/LG-Android-MMS-V1.0/1.2
Saturday, December 21, 2013 10:16 PM Host: sub-75-28-144-034.unitedsky.net Write a comment

What a wonderful page Kelly! So glad that you are still educating others about this terrible disease. I will never forget you being at the hospital when Brylie was born to help make sure she was tested. What a loving mother & friend you are! Continued prayers for your family.
521) Sharia Sewell 
IP logged Opera/9.80 (J2ME/MIDP; Opera Mini/4.2.22468/34.817; U; en) Presto/2.8.119 Version/11.10
Saturday, December 21, 2013 01:09 PM Host: 66-87-19-167.pools.spcsdns.net Write a comment

Our family remembers our precious Ben with love this holiday season and always!
520) Taylor 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Sunday, February 17, 2013 01:58 PM Host: pool-173-74-155-210.dllstx.fios.verizon.net Write a comment

i have macad and i almost died when i was 4
519) Wendy Nawn 
IP logged Mozilla/5.0 (Windows NT 5.1; rv:18.0) Gecko/20100101 Firefox/18.0
Wednesday, February 6, 2013 04:04 AM Host: c-71-230-243-10.hsd1.pa.comcast.net Write a comment

Happy Birthday yesterday to Alexis. Thinking of her.
518) lemon sharbrough 
IP logged Mozilla/5.0 (Windows NT 6.0; WOW64; rv:18.0) Gecko/20100101 Firefox/18.0
Tuesday, February 5, 2013 10:18 AM Host: 250.sub-75-254-249.myvzw.com Write a comment

dear alexis you are missed daily by many people. you brought such happiness to so many. i know you are enjoying your life in heaven, and like your grandmother said please continue to send us beautiful sunsets!! love you sweet thing
lemon
517) Judy 
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; Trident/5.0)
Saturday, December 8, 2012 04:51 AM Host: bas7-sudbury98-1088807146.dsl.bell.ca Write a comment

Your page is lovely keep up the great work..... Merry Christmas To All Of Our LOved Ones Gone Before Us..
516) Jennifer 
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10_5_8) AppleWebKit/534.50.2 (KHTML, like Gecko) Version/5.0.6 Safari/533.22.3
Tuesday, September 18, 2012 03:59 PM Host: 97-80-72-66.dhcp.slid.la.charter.com Write a comment

My husband and I are now rasieing our godson's daughter who has Mcadd. I was wondering if anyone knew of an Mcadd foundation in Louisana? We would like to meet others that share the same battles with us.
Thanks Jennifer
515) Krystal Annance 
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10_6_8) AppleWebKit/537.1 (KHTML, like Gecko) Chrome/21.0.1180.89 Safari/537.1
Friday, September 14, 2012 03:31 PM Host: c-75-68-194-196.hsd1.vt.comcast.net Write a comment

My heart goes out to all of Alexis's family and friends. I will share this information with my fellow nursing students, health care providers, and parents. Thank you for the information you provided. RIP Alexis! <3
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