Friday, October 10, 2003 06:47 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net
I am so sorry to hear about your beloved Alexis. You have my deepest sympathy.
I have a similar story. In June 2000, my healhty 3 day old baby died suddenly & silently in her sleep on our first night home from the hospital. MCAD was imediately suspected. It turns out she died from another genetic metabolic disorder - partial complex III. We have since had another daughter (not affected) and I am expecting again. Not a day goes by when I don't think of Hayley and miss her.
I can't imagine what you have been through since Alexis' death. My deepest sympathy always.