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49) Krystena Richards 
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; H010818)
Friday, October 10, 2003 06:32 AM Host: co-ctlwst-u1-c3c-246.clspco.adelphia.net Write a comment

The picture of Alexis on the second poem is absolutely beautiful! She is the most georgous little girl. My 8 yr old son who loves his brothers, who have GAII, really has a tender heart and stared at her picture and I could see the tears in his eyes and then he said, "Mommy, I would have liked her for a girl friend."
It is so hard to believe that a precious face,such as hers, is gone but I reassured Warren that she is with Jesus and is happy and in no pain. She has made it through something, that we all who are still living, have yet to experience. Please keep up her rememberance. I am sure she will never been forgotten but I am sure by your advocating for new born screening with her story, more parents will begin requesting testing long before it becomes mandatory.
Love,
Krystena Richards
Caden 5 yrs GAII
Carsen 16 weeks GAII
Warren 8yrs untested & pretty sure unaffected.
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