Friday, February 4, 2005 12:31 PM Host: cache-rtc-ab01.proxy.aol.com
I am so sorry to hear of your daughters passing. I am very new to this disorder. I just gave birth to my 3 child on nov. 22nd. They did the newborn screening test on her. i found out when she was 3weeks old that something was wrong with the results. They diagnosed her with MCAD. She now makes trips to riley childrens hospital in indy. she has been admitted twice to the hospitalsince shes been born. At 3 weeks old she got pheunmoia. and at 8 weeks she got RSV.. Its been very scary for me. I panic at every sniffle or sneeze. she is now also on the medicine levo-carnitine. she goes again next month to be checked on. Her other 2 sibling are also gonna be checked since now i've learned they can show symptoms of it when there older. i have a 2 year old and a 5 year old also. If you don't mind me asking had she ever acted sick when she was little? i'm now worried about my other children. i'm glad you have this site to make others aware of this. you have helped others by doing this. god bless your little angel.