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Tuesday, January 18, 2011 10:38 PM IP: Write a comment

My daughter has MCADD too. Hannah is not one of the luckiest of MCADD kids - she had an actual metabolic crisis at just three days of age and so had a stroke and now has right hemiplegia, but CP doesn't hold her back much, she is a therapy success story in every way. You can read about Hannah at And if anyone who has found you has an older child I am very interested in connecting to them too - I'd love to find a parent who could tell me how to beat that whole refusing to eat game! Also happy to talk to new parents who are scared - once you know the diagnosis, this really is something you can handle. Let's connect! My heart goes out to you angel mommies, daddies, and sibs.
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