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2476) Stacy 
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Monday, January 10, 2011 12:59 PM Host: adsl-69-224-46-80.dsl.irvnca.pacbell.net Write a comment

Your story is almost identical to my precious Sophie's story. She was born before they did the screening on newborns so, I had no idea about this disorder. My daughter passed away 9 years ago today and we finally got an answer last Friday that this is what she had also. Sophie was such a beautiful, kind-hearted little girl that was born 6 days after her daddy died. Life seems so unfair at times.
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