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2388) Jen 
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Friday, December 19, 2008 07:23 PM Host: pool-71-254-114-53.hrbgpa.east.verizon.net Write a comment

I am so sorry for your loss, but thankful for your courage. AFter my daughters near death in 2005, we have been medically testing her every since. now almost 4 years later and still finding her in bed unconsious. WE have been to 14 doctors, and still no diagnosis. This is the first thing that sounds close. But now I am scared to death--we spent the day on the phone with our docs, Gaestro, ANd those at Children's hospital of Phila. ANd they are not helping, I was wondering if there is anyway I could be contacted by Anna's parents. We see in there blog that they went to CHOP as well. WE would love to know who they saw--plus we want to get a screening test ASAP.
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