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2240) Eileen Quinlan 
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Tuesday, June 5, 2007 11:33 AM Host: Write a comment

My name is Eileen and I have a daughter with a rare metabolic disorder called Beta Ketothiolase Deficiency. I was searching the web for sites on awareness bracelets and came across your site. What a BEAUTIFUL little angel Alexis was. Just adorable! My daughter Olivia is now 2-1/2 and doing well. Thankfully they detected her through NBS, first ever to be screened for this disorder, only 50 people world wide have it. I wish you and you family well and your in my prayers! Stay strong as you seem to be doing!

Eileen Quinlan
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