Wednesday, April 4, 2007 09:18 AM Host: c-71-230-109-51.hsd1.pa.comcast.net
I just wanted to say that I am very sorry for your loss. As I was reading your story it brought tears to my eyes as I have MCAD myself. I was actually the 1st case ever diagnosed with it back in 1981 when I was only 13 months old. I couldn't imagine what my parents went through until I had a daughter of my own. Due to the newborn screening tests we were able to detect it. She is now 4 1/2 and doing very well but it has been and still is a struggle. Due to the newborn screening test that struggle is possible. So I just wanted to send my prayers and tell you that what you are doing by reaching out and making other parents aware is fantastic.