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165) Tim and Lisa Ware 
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Monday, June 28, 2004 05:24 AM Host: Write a comment

Thank you for sharing your story with us. We have never heard of this disease, but it is definitely devastating. We have two little ones of our own and will request testing at their upcoming exams. We are so very sorry for the loss of precious Alexis. We can't imagine the loss of a child. Our thoughts and prayers go out to you and your loved ones. Alexis is a beautiful angel now with her wings spread wide. There is no stopping her now! God Bless!
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