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161) Cheryl 
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Wednesday, June 16, 2004 06:59 PM Host: spider-dtc-td112.proxy.aol.com Write a comment

I was touched by the story of Alexis and can not imagine your loss. She became an angel on my Birthday. My daughter Anna was diagnosed through the newborn screening when she was 8 days old. I have never been so terrified in my life. I now know how lucky we were to have the diagnosis at such a young age. Anna is now 15 months old and we have been lucky so far with no major illnesses. I just wish that the newborn screenings were required everywhere.
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