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143) Aleatha S. Rickard 
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Saturday, March 27, 2004 10:05 AM IP: Write a comment

My son, Levi, was born on 1/19/04 at 33 weeks and immediately began experiencing severe apnea spells. It got so severe that he stayed in the hospital for a week on C-PAP, a feeding tube, IV, & a pH probe to detect reflux. His neonatologist was dumbfounded at Levi having an apnea every minute & decided to do all possible labs. At Levi's next doctor's visit, it was confirmed that he has MCAD deficiency. Levi is now 10 weeks old and is finally smiling & cooing & we are all so glad we finally found out what was happening to him. I read your story about Alexis & it touched my heart, b/c I know how you feel. I am truly sorry about your daughter, & wanted to let you know that even though she isn't with you anymore, she is saving lives--including the life of our little Levi. Thank You, Alexis.
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