| Name |
Comments |
| 474) |
melissa w |
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Location:
okc ok |
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 Friday, July 23, 2010 02:50 PM Host: 173-131-149-47.pools.spcsdns.net
So sorry for your loss. I'm about to be a mother with my first child. I hate reading all these stories of children passing away and it scares me so much. God bless
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| 473) |
Cami |
| cmorse1111@gmail.com |
 |
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My daughter was diagnosed with MCADD when she was a week old. It was pretty tough the first year trying to understand it, she is 5 now and I get so stressed when she is sick. Tonight actually, she is sick with what we think is the flu, I have already informed the Dr., but I'm still researching it 5 years later to make sure I'm doing everything right. I've been getting her up every couple hours to give her the polycose/gatorade mix. I love her with all of my heart and soul. Anyways, here is a good link for parents to get a better understanding of what MCADD is.
http://www.cdph.ca.gov/programs/NBS/Documents/NBS-mcadd0605.pdf
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| 472) |
Toni Spegal |
| tonispegal@yahoo.com |
Location:
Fairborn, Ohio |
 |
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We lost our daughter Hannah Darlene Flowers on December 14, 2009. I had placenta abrupto and delivered her stillborn.She was beautiful and weighed 4lb 7oz. We miss her so much and she is a little Angel in Heaven, and will forever be in our hearts.
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| 471) |
Jeanette Job |
| nettynettie@yahoo.co.uk |
Location:
Fleetwood,Lancs, England U.K |
| |
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so very sorry I`ve never heard of M CAD before my heart goes out to the parents and families of those whose lost there precious children to it
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| 470) |
jennifer schulkey |
| jschulk81@hotmail.com |
Location:
north platte ne |
| |
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Mother of mcadd angle and his brother with mcadd
|
| 469) |
Breanne Smith |
|
Location:
ks |
| |
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Friday, April 30, 2010 02:39 PM Host: adsl-68-92-139-42.dsl.wchtks.swbell.net
i am writing to my cousin alexis.she has been in heaven for a while and i miss her always and forever i love u alexis and i will see you agaim someday! i love u again!!!!
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| 468) |
mrs a smith |
| annsmith54@hotmail.co.uk |
Location:
birmingham |
| |
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a very touching verse
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| 467) |
Tina Pielstick |
| Youarelovedone@yahoo.com |
Location:
Wa state |
| |
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Sending love prayers and peace ~Tina~ pos moma
|
| 466) |
The Brown Family |
| jilese_birds_16@hotmail.com |
Location:
Masterton,New Zealand |
| |
|
The First 6 months are aparently the worst.i have to feed my son every 3 hours no mater what and it gets hard sometimes but im sure it will get easier as time goes on.im sorry to hear of your loss.much love goes out to you and your family.From The Brown Family
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| 465) |
Jilese Simpson |
| jilese_birds_16@hotmail.com |
Location:
Masterton, New Zealand |
| |
|
Hello
My Name Is Jilese Simpson in 19 years old and my son (Conan) was diagnosed with MCADD a week after he was born he is 3 months old now.Its taken a huge strain on my life.The doctors did not even know what it was and had to look on the internet.after they found out they came to my house announcing what he had and told me he could die and that upset me.and as a mother none of us what to be told that our child could die.I see a specialist in Wellington every 6 months and another specialist every 3 months for diet plans, and another specialist to followup every month.i still dont get the full understandment of the condition but im sure i will one day.we were recently in hospital 2 weeks ago with food poisoning and my partner was sick then conan got it then i got it and we had to rush Conan to the hospital where we spent 5 days in isolation because food poisoning is contagious.they did regular blood sugar level tests and everything just came right back up so they had to give him the bottle afer evry breast feed and some glucose oraly to keep his sugar level right.im so glad he came right.i was worried the whole time we were in hospital.its a hard thing to have for your cild so i know where you are all coming from to those of you who have MCADD or have children with MCADD.
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| 464) |
susan hill |
| sjhill1978@aol.com |
| |
|
I was 31 when I had my daughter and I found out I had mcad through her newborn screening the hospital took her blood to early and she had came back positive for it and I took her to get tested again and she did not have it so they tested me and I came back positive she is my angel
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| 463) |
Kathie Heller |
| kheller@eaglecom.com |
| |
|
Our first and only grand child is 11 days old and we just found out that he has mcadd. We are hoping and praying he is going to be ok and have as close a normal life as possible.
|
| 462) |
Carters Mom |
| sanchez_marion30@yahoo.com |
Location:
Pawtucket RI |
| |
|
I am soo sorry for your loss! My son is now 19 months. we have been the hospital more then 9 times in the past 19 months! we found out about carter MCADD when he was born. and i am so thankful for it. i wish there was a way to get more info out there. every time we go to the hospital there is someone we need to explain MCADD too and its soo annoying! i wish there was something bigger we could do!
|
| 461) |
denise |
| deniselorrainegraves@yahoo.com |
Location:
blairsville ga |
| |
|
i came across this page today when i was looking to see what is the danger zone for my daughter..i am so sorry to hear about your loss..my daughter has mcadd also and it has been very hard to understand and explain as well...may you always have happiness in your life..god bless and thank you for putting up this page ...god bless denise!
|
| 460) |
Jessica Chapman |
| still_420@hotmail.com |
Location:
British Columbia Canada |
| |
|
I am so sorry for you loss of such a beautiful little girl. My son Parker was diagnosed at 2 weeks and I have never been so thankful of finding something out in my life. Thank you so much for your courage and strength to help other families with mcadd. You are real inspirations! Thank you.
|
| 459) |
Deb Douglas |
| lilreddvette99@yahoo.com |
Location:
Arkansas |
| |
|
My best friend lost her daughter 6 yrs. ago, and still grieves for her daily. But, she is now a grief counselor. I admire people who turn sorrow into action to help others. God Bless you and your efforts. Your granddaughter was beautiful here, but we know she is shining brightly now in Heaven!
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| 458) |
melissa beaucamp |
| rulebreakers5@yahoo.com |
Location:
Ohio |
| |
|
i am learning a lot about Mcadd my youngest granddaughter was diagnosed with it when she was born by luck my son was in the Marines and where he was located they automatically test for this, i watched her this past weekend and had a bought with her disease i was so scared but in the end she is ok and i learned a lot about this disease. if you have more to tell me let me know im still learning.
missy
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| 457) |
ELIZABETH AMBROS |
|
Location:
CHARLESTON, SC |
| |
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Saturday, January 30, 2010 08:43 AM Host: c-68-58-254-152.hsd1.sc.comcast.net
I am sorry for your loss and think that this webpage is an awesome way to make parents and future parents aware of these diseases. Thank you for the advice.
|
| 456) |
melinda |
| roxanne94@yahoo.com |
Location:
ga |
| |
|
My mom just found out to day that my little adopted sisters son 1 week old had mcad We live so far apart I'm not much help.Im searching for information to try and understand .Thank you for the web sight and God Bless you.
|
| 455) |
Jaime Jensen |
| Jaime@wayupnorth.net |
Location:
St. Paul, MN |
| |
|
Thank you and God Bless you and your whole family! As a mother of a son who has MCAD and found out through newborn screening, I praise your work and thank God for your beautiful little girl. Thank you!
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