| Name |
Comments |
| 508) |
Sheena |
| sheenybean@hotmail.com |
Location:
Abbotsford, B.C., Canada |
  |
|
Hello,
I just wanted to re-emphasize the importance of having children tested early on for rare conditions such as MCADD. Just 3 years ago I had never heard of this condition. We recently has our second child, and both have been dignosed with MCADD. Since we found out early with both, we have not had any major problems, other than having my daughter admitted once to the hospital when she was sick. Knowing is everything.
|
| 507) |
Lisa Lathan |
| wrtnls@yahoo.com |
Location:
Hiram GA |
 
|
|
I am sorry for your loss. My daughter Olivia is 6 weeks, we found out when she was 6 days old that she has MCAD.
Thank you for taking the time to educate others about this disorder.
|
| 506) |
laura |
| laurawilson2509@hotmail.co.uk |
Location:
united kingdom |
 |
|
just came across your page, while looking for a heaven poem for my daughter, have just read this with tears streaming down my face :( sleep tight beautiful angel xxxxxxx so sorry for your loss xx
|
| 505) |
Rose |
| bcnuleo@nb.sympatico.ca |
Location:
Canada |
| |
|
I wanted to say how sorry I am for your loss of such a beautiful precious child.I read her story with tears in my eyes I agree Alexis has left a huge imprint on the lives of so many and I am one now.Thank you for share her with us. I feel blessed to have found Alexis memorial page.
|
| 504) |
carmen soto |
| csoto2011@live.com |
| |
|
The most beautiful poem i've ever read...now i know my brother is ok...
|
| 503) |
Autumn Breon |
| weavea76@yahoo.com |
Location:
Loganton, PA |
 |
|
Our daughter Carlee tested positive for MCAD at her newborn screening. She is currently 6 weeks old and doing well so far. Thank you for the info provided on this webpage, this was not a diagnosis we have ever heard of (and neither had or pediatrician, but he has been wonderful with getting himself and us educated) so it is helpful to get the insight from other families that MCAD has touched their lives.
|
| 502) |
Tatjana |
| pasenjants@gmail.com |
Location:
Birmingham, AL |
| |
|
I am so sorry for the loss of your beautiful angel. Creating this website You are helping to save many children's lives... thank you very much and God Bless you. Tatyana
|
|
|
 Thursday, October 27, 2011 04:17 AM Host: reverse51-90.reserver.ru
what a beautiful site, thank you for this publication and I also wish you good luck and good day
|
| 500) |
anna |
| scoobydoofan173@yahoo.com |
  |
|
i have a son that has mcadd too and he is 7 monuths and im not sure how to understand it.. i hope ur kids grow out of it
|
| 499) |
Malissa Parks |
| spunkysouthern@yahoo.com |
Location:
Wilson NC |
| |
|
I am so sorry for the loss of your beautiful angel!! A friend of ours recently lost her 13 month old daughter to a heart disease that could have been detected earlier by screening. It may or may not have changed the outcome (she died waiting for a donor heart) but earlier treatment might have at least given her more time. :( God bless you and I will keep you in my prayers!
|
| 498) |
Sheila |
| lionsheilarn55@yahoo.com |
Location:
NH |
| |
|
Our very precious 1st granddaughter was born 2 weeks ago today and diagnosed with MCAD. I have been gathering any information I can to learn and prevent and protect her from harm.
|
| 497) |
Kirk Ward |
| kirk.ward@ymail.com |
Location:
Nottingham, England. |
| |
|
Hi, I came across this website researching MCADD as my 11 month old Daughter was diagnosed with it at 2 weeks old. She is now 11 months old and shes abslutely fine. Hopefully this wont cause her many problems in the future but she has already spent a week in hospital due to her having a Viral Infection and she refused to feed.
I am so sorry for your loss and the loss of everyones Children on this guestbook and I hope that I never have to suffer the same. God Bless everyone.
|
| 496) |
Sophia Greathouse |
| jpfanatic2009@yahoo.com |
Location:
USA |
| |
|
I stumbled on this website while doing research for a project. I looked at this little girls age, and she would be about the same age as me now. I have MCADD too, so that's kind of cool, I guess. I'll keep her in my prayers!
|
| 495) |
Dianna J. Powell |
| dianna.powell@cityinsure.org |
Location:
Beckley, West Virginia |
| |
|
My daughter Morgan Brianne Powell died of this disease on 3/13/92. She was 13 months old. She had been diagnosed and died 7 months later.
|
| 494) |
sarah hatchell |
| corey_downs@yahoo.com |
| |
|
im so sorry to hear this this story made me cry.. i now learned today that my 8 day old may have this disease and i am so scared for him i feel helpless for him there is nothing i can do but wait for his results and pray i wish you the best of luck and i feel for you!!
|
| 493) |
Alexis' Grandma Kris |
| kckristal@aol.com |
Location:
Kansas |
 |
|
Alexis, 8 years ago today, Jesus and the Angels took you to Heaven to live with God. I know your smile shines so brightly that it helps light the way for others. Having you in my life was, and will always be, one of the greatest gifts of my life. I love you, and I miss you more than words could ever say. I asked God to give you a special hug from me today, and I know He will. You will never ever leave my thoughts, and you will be with me in my heart forever!
|
| 492) |
clydedriscoll |
| clydedriscoll@live.com |
Location:
canada |
| |
|
i have two childrean who has the conditionM.C.A.D and im so sorry to here of your loss my little girl is 4 this month and my boy is 8 years old as we speak your site hit me hard and so far i never talked to any other family whos kids have M.C.A.D i would love for a reply thankyou
|
| 491) |
annmarie trimm |
| trimmannmarie@yahoo.com |
Location:
syracuse,new york |
| |
|
i am still trying to get my 5year old son tested but they will onlt test for different illnesses if the child is hospitalized
|
| 490) |
faye evans |
| ladyf1952@yahoo.com |
| |
|
that was one of the sweetest poems i have ever read i wish i could post it to my facebook page
|
| 489) |
Glenda |
| spellerberg@sbcglobal.net |
Location:
KCMO |
| |
|
Dear Kelly, I think about Alexis often. I ran across pictures of Nick and Alexis dressed for a wedding recently, she was a beautiful and sweet girl. I think of all of you often. Your strength is a source of strength for me and many others.
|
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508 Records Viewed Per Page: 20
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